Something New – Burning Mouth Syndrome Support

Burning Mouth Syndrome Support Icon8 years of chronic burning pain. The anniversary has passed, and so we start on the 9th year. 

I have always had this feeling that something good just might come out of all of this mess, and with the help of my friend Dennis from the Facebook Support Group for BMS, I think that “something good” may have made its appearance. Continue reading

Burning Mouth Syndrome-On Its Own

Warmth---Fire

Many of these posts that follow this one first appeared on another blog I have called, “Kali’s OQM Musings,” that explores the parallels between parenting and management, along with some personal life writing. If you are interested in those topics, feel free to check in!

Burning Mouth Syndrome became a very popular topic on that blog, and it was suggested that I break these posts out into their own venue.

My goal is to share some of my journey with this mysterious, and incredibly persistent syndrome, and perhaps to help you along the way.

Stop in any time, comment if you wish, and if there is a question I can help you with, I will be happy to do so.

Welcome.

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Pain Puzzles – How Long to Solve Them?

Anniversary CakeAs many of you know, I am very close to the 8th anniversary of my second bout with Burning Mouth Syndrome.

A friend I made on the Burning Mouth Syndrome (BMS) Facebook group page named Dennis and I have stayed in contact even after I left the group.

(Trolling is bad, boys and girls; don’t do it because people like me will not hang around for it!)

He became interested in the syndrome after his lovely wife was afflicted, and has been keeping up on research, traveling to multiple specialists, and keeping others informed about any progress toward finding a cause or a cure, no matter how tangential it might be. Continue reading

Burning Mouth…Impossible Choices

May 2016 will officially be 8 years of burning. – No celebrations are planned.

If you have checkCedar Pollinatinged into this blog from time to time, you have seen me try all of the medicines and supplements and coping techniques that have come my way or been recommended by any of my Neurologists (three, so far).

Continue reading

The Pity Party-Burning Mouth Syndrome

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Image courtesy of holohololand/FreeDigitalPhotos.net

I have been suffering from Burning Mouth Syndrome for nearly six and a half years now.

Every once in a while, what my Neurologist euphemistically refers to as “the persistence of it” overwhelms me and I have a brief, but intense pity party. Continue reading

Internet Interventions-Burning Mouth Syndrome

_DSC6302I have been active on a Facebook Closed Support Group page for Burning Mouth Syndrome sufferers. It is a positive experience most of the time, but occasionally things take a turn for the worse, and I see people posting suicidal thoughts and deep despair. Continue reading