Aimovig, Erenumab, Migraines, Oh My!

There is a new migraine prevention medicine out there that is causing a lot of excitement in the chronic migraine sufferers of the world. Aimovig/Erenumab is the first and only FDA-approved Calcitonin Gene-Related Peptide (CGRP) receptor blocker and my friends who have been battling debilitating migraine pain for years are eager to try it.

You can learn more about this at Aimovig. It is available by prescription only and right now reports are coming in that the manufacturer has been overwhelmed by the demand and there may be a wait to get this self-injectable monthly migraine preventative.

Will it work for everyone? The magic 8 ball says, “Probably not.”

That is the case for any medication, my friends. It will help some more than others, and often for reasons we don’t know or understand. But it is definitely worth having a conversation with your doctor if you suffer from chronic or episodic migraines and you have tried all of the usual suspects without lasting relief. The manufacturer is careful to say that it will lessen the number of migraines you have, not eliminate them completely.

Now, here’s a question…Could it help with Burning Mouth Syndrome pain?

Only time and usage will tell. BMS sufferers can be a subset of the larger number of people who suffer from migraines, but some are not. I have had chronic migraines for nearly twenty years and will be trying this medication as soon as my local pharmacy receives it.  I will let you know if I perceive any relief of my primary BMS. This will be anecdotal, of course, and I have no expectation that any research will be done any time soon on this medicine’s effect on other chronic pain syndromes.

Fingers crossed!

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Burning Mouth Syndrome & Your Teeth

When your mouth and tongue feel like they are on fire, the last thing you may be thinking of is going for a dental checkup or cleaning. Just the thought of someone messing around in your mouth, poking, prodding, and merely keeping your mouth open for that long can be daunting. But the consequences of leaving your teeth uncleaned and untreated can be so much worse than a temporary discomfort.

Trust me.

I suspect my Burning Mouth Syndrome was kickstarted by dental procedures on a tooth that abscessed, had a root canal, an apicoectomy when that didn’t work and when that failed as well, the tooth was eventually surgically extracted along with the one next to it. That’s a lot of trauma at once and I have never believed that the onset of this round of BMS was not connected. I ended up with a beautiful bridge, a roaring case of BMS, and found an excellent dentist who was aware of my situation and treated me with kindness, gentleness, and discernment

I go for checkups and cleaning every six months, and can always call if I am experiencing any pain or discomfort. In nearly ten years, I have not had another cavity or issue due to this regimen and chewing xylitol gum whenever I chew gum.

Will I eventually need a dental procedure? Odds are good.

I have one crown that has its enamel chipped off and another molar that is under close watch, so dental work is definitely in my future, but since my dentist knows my history we are waiting as long as possible to do anything that might have the side effect of worsening the burning. It will be unavoidable at some point, but we talk about it each time I visit and I trust that he will do the right thing at the right time.

So, when is the last time you went for a dental checkup? If it has been over a year, please take this as a reminder to take care of yourself if you possibly can.

Prevention now can keep you from more pain later, and that is always a good thing.

 

 

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When Burning Mouth Pain Takes Center Stage

I have been battling oak pollen allergies since the beginning of April. We got a good rain for a day, and a small respite, but the levels are back up in the medium category today and I feel it.

Burning Mouth Syndrome is a foe I have been battling for ten years now (Mother’s Day will mark the 10th anniversary…Yay?) and I have noticed a pattern that arises when I am forced to take decongestants along with my antihistamine because nasal congestion is rocking my world. There is no doubt in my mind that the drying action of the decongestants, although needed and effective for the life-sustaining action of breathing, also irritates the burning neuralgia of BMS. In spite of adding quarts of water to my intake, the pain has been nearly unbearable some days. When added to a string of migraines, triggered by sinus pressure, it has been a tough time.

I found myself looking forward to that next dose of Klonopin/Clonazepam so I could doze, even if I didn’t really have time to do that. To sit in my chair, watching TV with my husband, and just drifting off to sleep where the pain was not present was a gift on those high-burning days. But what do you do when you have things to do, people to see, and responsibilities that are not subject to rescheduling? What do you do when there is a once in a lifetime event going on, and you can’t afford to miss it?

You power through.  Continue reading

Revisiting Your Meds – Life With Burning Mouth Syndrome

Medical FilesMany of us go through what I think of as the “thrashing stage” when we first start experiencing the pain of Burning Mouth Syndrome (BMS). It is a time of anger, sorrow, guilt, and confusion as we try to determine what is going on, why it happened, and what we can do about it. You may have thought, “If only I hadn’t done this, or if only that hadn’t happened…I would not be in pain.” It isn’t logical, but often, neither are we at this stage of our journey. Continue reading

Coping With Stress and BMS

09a9aa5c07898aca806cc27863f79d20As you know, I have been dealing with Burning Mouth Syndrome for far longer than I ever thought possible.

I know there are those of you who are entering or have passed your second decade with this chronic pain and my heart goes out to you.

All of us who have dealt with BMS know that stress just makes it worse. We have seen the pattern again and again, and yet, life goes on.

I have decided to run for a local, elected office.

No stress there, right?

The urge to make a difference and be of value has trumped my hesitation to put myself out there and add stress to my life…so how will I handle it? Continue reading

Something New – Burning Mouth Syndrome Support

Burning Mouth Syndrome Support Icon8 years of chronic burning pain. The anniversary has passed, and so we start on the 9th year. 

I have always had this feeling that something good just might come out of all of this mess, and with the help of my friend Dennis from the Facebook Support Group for BMS, I think that “something good” may have made its appearance. Continue reading