I have been battling oak pollen allergies since the beginning of April. We got a good rain for a day, and a small respite, but the levels are back up in the medium category today and I feel it.
Burning Mouth Syndrome is a foe I have been battling for ten years now (Mother’s Day will mark the 10th anniversary…Yay?) and I have noticed a pattern that arises when I am forced to take decongestants along with my antihistamine because nasal congestion is rocking my world. There is no doubt in my mind that the drying action of the decongestants, although needed and effective for the life-sustaining action of breathing, also irritates the burning neuralgia of BMS. In spite of adding quarts of water to my intake, the pain has been nearly unbearable some days. When added to a string of migraines, triggered by sinus pressure, it has been a tough time.
I found myself looking forward to that next dose of Klonopin/Clonazepam so I could doze, even if I didn’t really have time to do that. To sit in my chair, watching TV with my husband, and just drifting off to sleep where the pain was not present was a gift on those high-burning days. But what do you do when you have things to do, people to see, and responsibilities that are not subject to rescheduling? What do you do when there is a once in a lifetime event going on, and you can’t afford to miss it?
You power through. Continue reading
I realized I haven’t posted since the holidays, and I could easily blame that on everything that has gone on…the wedding in November of our younger daughter went beautifully and just this month they surprised us with the house they are purchasing, our older daughter’s wedding approaches (so quickly!) in May and they have begun to build a house not too far away from us, and of course the day-to-day work of a being a busy philanthropist and volunteer!
Did I mention I am taking on another blog editing gig?? 😀 Continue reading
The holidays are here and you are rushing around picking out gifts for those you love, preparing for travel or for travelers, and many of you may be under more stress than usual. As all of us who suffer from Burning Mouth Syndrome or other chronic pain conditions know, stress is not our friend.
What can you do to cope with the gulf that may exist between what you want to do and what you can do?
Press the pause button. Continue reading
Both of our daughters are getting married. The younger’s wedding is just a couple of months away, and the older daughter’s wedding is next spring. Once in a lifetime moments happen, and you want to treasure every one of them, but your chronic pain companion will also be a guest at that special event and maybe you are wondering what you can do. Continue reading
Yesterday, an old friend reached out to me through Facebook and said she had a friend who was having a “burning tongue,” and she remembered that I had said something about that at some point.
Yes, my friends, this is how awareness often happens. Continue reading
In a recent post, I talked about my upcoming visit with my neurologist. You can read that post at Burning Mouth & Neurologists.
The meeting went fine, and as I expected, there was nothing new for Burning Mouth Syndrome. He refilled my prescription for Klonopin ODT and I will continue my present therapy, which has helped better than anything else I have tried.
I mentioned in that post that I was going to ask about the migraines that I have been having at a rate of 8-17 per month for about sixteen years. He told me that the Botox therapy has improved, and offered to check into insurance pre-approval for that procedure, but also said there was something new that I could consider. Continue reading
Our younger daughter just got engaged.
It was a dream proposal (at the highest lookout of Kauai’s Waimea Canyon) and it will be a dream wedding next fall. They are wonderful young people who have loved each other for nearly seven years, and the next stage of their lives together is right around the corner!
I, like many of my fellow Burning Mouth Syndrome (BMS) sufferers, have put on weight from the stress of chronic pain and the transient relief of eating. I have resolved to change that trend, both for my health and to feel better about myself. Continue reading