Many of us go through what I think of as the “thrashing stage” when we first start experiencing the pain of Burning Mouth Syndrome (BMS). It is a time of anger, sorrow, guilt, and confusion as we try to determine what is going on, why it happened, and what we can do about it. You may have thought, “If only I hadn’t done this, or if only that hadn’t happened…I would not be in pain.” It isn’t logical, but often, neither are we at this stage of our journey. Continue reading
Yesterday, an old friend reached out to me through Facebook and said she had a friend who was having a “burning tongue,” and she remembered that I had said something about that at some point.
Yes, my friends, this is how awareness often happens. Continue reading
I ran into an old friend the other day, and the first thing she said was, “You look great! Is the Burning Mouth gone?”
Those of you who suffer from this mysterious chronic pain (or others like it) know exactly what I felt in that moment.
In a flash, you decide whether to tell this sweet, well-meaning person that, “No it hasn’t gone away, but thank you for asking.” (Potentially opening yourself up to a protracted conversation about it, right?)