Many of us go through what I think of as the “thrashing stage” when we first start experiencing the pain of Burning Mouth Syndrome (BMS). It is a time of anger, sorrow, guilt, and confusion as we try to determine what is going on, why it happened, and what we can do about it. You may have thought, “If only I hadn’t done this, or if only that hadn’t happened…I would not be in pain.” It isn’t logical, but often, neither are we at this stage of our journey. Continue reading
Yesterday as I grabbed my morning coffee at the neighborhood shop, I spotted an acquaintance. I had seen her around the gym where she is always intense and focused but had only spoken with her once or twice over the years. I said hello and reminded her who I was (You know when you get that feeling that they know they know you but might not remember your name or the context?) and we stood together waiting for our orders.
“My God,” she said, looking at me intently, “You always look so glowing. Why is that?” Continue reading
Another Mother’s Day is past and I enter my tenth year with Burning Mouth Syndrome (BMS). It is my constant companion, the first thing I think of when I rise and the last thing I think of when I go to sleep. Continue reading
Yesterday, an old friend reached out to me through Facebook and said she had a friend who was having a “burning tongue,” and she remembered that I had said something about that at some point.
Yes, my friends, this is how awareness often happens. Continue reading
I have been writing about Burning Mouth Syndrome (BMS) for years now, and recently a reader reached out to me and said she had been dealing with this chronic pain for over fifteen years. She had read one of my blog posts and has been keeping a pain diary for the first time ever.
“Hallelujah, sister!” I wrote. Continue reading
It’s just about time for my yearly check-up with my Neurologist. I refer to him as #3, since that is how many I have gone through in over 8 years of dealing with Burning Mouth Syndrome (BMS).
Yes, you read me correctly…I am now at yearly check-ups. Continue reading
As you know, I have been dealing with Burning Mouth Syndrome for far longer than I ever thought possible.
I know there are those of you who are entering or have passed your second decade with this chronic pain and my heart goes out to you.
All of us who have dealt with BMS know that stress just makes it worse. We have seen the pattern again and again, and yet, life goes on.
I have decided to run for a local, elected office.
No stress there, right?
The urge to make a difference and be of value has trumped my hesitation to put myself out there and add stress to my life…so how will I handle it? Continue reading