A Little Progress…But Not With BMS

Migraine Headache PainIn a recent post, I talked about my upcoming visit with my neurologist.  You can read that post at Burning Mouth & Neurologists.

The meeting went fine, and as I expected, there was nothing new for Burning Mouth Syndrome. He refilled my prescription for Klonopin ODT and I will continue my present therapy, which has helped better than anything else I have tried.

I mentioned in that post that I was going to ask about the migraines that I have been having at a rate of 8-17 per month for about sixteen years. He told me that the Botox therapy has improved, and offered to check into insurance pre-approval for that procedure, but also said there was something new that I could consider. Continue reading

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Weighty Decisions – Life with Burning Mouth Syndrome

img_4278Our younger daughter just got engaged.

It was a dream proposal (at the highest lookout of Kauai’s Waimea Canyon) and it will be a dream wedding next fall. They are wonderful young people who have loved each other for nearly seven years, and the next stage of their lives together is right around the corner!

I, like many of my fellow Burning Mouth Syndrome (BMS) sufferers, have put on weight from the stress of chronic pain and the transient relief of eating. I have resolved to change that trend, both for my health and to feel better about myself. Continue reading

Coping With Stress and BMS

09a9aa5c07898aca806cc27863f79d20As you know, I have been dealing with Burning Mouth Syndrome for far longer than I ever thought possible.

I know there are those of you who are entering or have passed your second decade with this chronic pain and my heart goes out to you.

All of us who have dealt with BMS know that stress just makes it worse. We have seen the pattern again and again, and yet, life goes on.

I have decided to run for a local, elected office.

No stress there, right?

The urge to make a difference and be of value has trumped my hesitation to put myself out there and add stress to my life…so how will I handle it? Continue reading

BMS-Your Invisible Companion

2016-6 Tulsa 40 Reunion 4I ran into an old friend the other day, and the first thing she said was, “You look great! Is the Burning Mouth gone?”

Those of you who suffer from this mysterious chronic pain (or others like it) know exactly what I felt in that moment.

In a flash, you decide whether to tell this sweet, well-meaning person that, “No it hasn’t gone away, but thank you for asking.” (Potentially opening yourself up to a protracted conversation about it, right?)

OR Continue reading

Something New – Burning Mouth Syndrome Support

Burning Mouth Syndrome Support Icon8 years of chronic burning pain. The anniversary has passed, and so we start on the 9th year. 

I have always had this feeling that something good just might come out of all of this mess, and with the help of my friend Dennis from the Facebook Support Group for BMS, I think that “something good” may have made its appearance. Continue reading